开放期刊系统

癌症患者照顾者决策复原力的研究进展

Junying Liu, zongming Guo, lihua Wang

摘要

随着癌症的发病率逐年提高,且由于癌症的复杂性,癌症患者照顾者的各种困扰也愈发严重;而家庭复原力对癌症家庭是个有益变量,可以协助其有效地应对。本文旨在通过对国内外相关文献进行探索,来对家庭复原力的概念、评估工具、影响因素及干预措施等进行综述,以期为提高我国癌症患者照顾者的家庭复原力水平提供参考。


关键词

癌症患者;照顾者;家庭复原力


参考

赵苗苗,高月霞,徐燕飞,等.癌症生存者整合型照护模式的概念框架、特征及对我国的启示[J].中国全科医学,2024,27(23):2813-2821.

Cui P, Shi J, Li S, et al. Family resilience and its influencing factors among advanced cancer patients and their family caregivers: a multilevel modeling analysis. BMC Cancer. 2023;23(1):623.

Francesca R ,Gil G ,Claudia C , et al. Informal caregiving for cancer patients. [J]. Cancer, 2013, 119 Suppl 11 (11 Suppl.): 2160-9.

Lee YH, Liao YC, Shun SC, et al. Trajectories of caregiver burden and related factors in family caregivers of patients with lung cancer. Psychooncology. 2018;27(6):1493-1500.

王海兰,苟菊香,陶琳.国内外癌症患者及照顾者个人复原力与家庭复原力的研究进展[J].四川医学,2023,44(4):418-422.

林丹,王睿,陈培,戴正香,廖子婷,吴雨蓉.癌症患者与照顾者应对方式和社会支持对家庭韧性影响的主客体互倚模型分析[J].护理与康复,2023,22(8):6-9.

McCubbin H I, Thompson A I, McCubbin M A. Family assessment: Resiliency, coping and adaptation: Inventories for research and practice[J]. (No Title), 1996.

赵西西, 孙霞, 王雪芳, 等. 家庭复原力的研究进展及其对危机家庭的护理启示[J]. 中华护理杂志, 2015, 50(11): 1365-1368.

Line L ,Lone R ,Aagaard M P , et al. Cancer caregiving tasks and consequences and their associations with caregiver status and the caregiver's relationship to the patient: a survey. [J]. BMC cancer, 2014, 14 (1): 541.

Ullrich A, Ascherfeld L, Marx G, et al. Quality of life, psychological burden, needs, and satisfaction during specialized inpatient palliative care in family caregivers of advanced cancer patients. BMC Palliat Care. 2017;16(1):31.

李淑妮,陆青梅,黄丽珍.支气管哮喘患儿主要照顾者照顾负担研究进展[J].全科护理,2024,22(12):2238-2242.

唐青峰.恶性肿瘤患者主要照顾者心理弹性现状及影响因素的研究[D].石河子大学,2018.

Tang W R. Hospice family caregivers’ quality of life[J]. Journal of clinical nursing, 2009, 18(18): 2563-2572.

Smith L, Morton D, van Rooyen D. Family dynamics in dementia care: a phenomenological exploration of the experiences of family caregivers of relatives with dementia[J]. Journal of psychiatric and mental health nursing, 2022, 29(6): 861-872.

周雪果,胡君娥,何文斌,等.癌症患者照顾者益处发现的研究进展[J].解放军护理杂志,2020,37(03):65-67+88.

张爱华,刘晓虹.心理弹性研究进展及其对我国创伤护理的启示[J]. 中华护理杂志, 2011, 46(7): 728-730.

Denckla CA, Cicchetti D, Kubzansky LD, et al. Psychological resilience: an update on definitions, a critical appraisal, and research recommendations. Eur J Psychotraumatol.2020;11(1):1822064.

Southwick S M, Bonanno G A, Masten A S, et al. Resilience definitions, theory, and challenges:interdisciplinary perspectives[J].European journal of psychotraumatology, 2014, 5(1): 25338.

Rosenberg AR, Wolfe J, Bradford MC, et al. Resilience and psychosocial outcomes in parents of children with cancer. Pediatr Blood Cancer. 2014;61(3):552-557.

Rosenberg A R, Baker K S, Syrjala K L, et al. Promoting resilience among parents and caregivers of children with cancer[J]. Journal of palliative medicine, 2013, 16(6): 645-652.

吴文娟,刘嘉斌,刘娟.癌症复发恐惧感对乳腺癌患者希望水平的影响:一项基于心理复原力、自我倡权能力的链式中介模型[J].现代医学,2024,52(05):737-743.

张敏,史慧玲,王清.应对方式与急性脑卒中患者心理弹性的相关性及其作用[J].安徽医学,2020,41(08):883-886.

刘雯雯, 李林, 宋静静. 社会支持, 心理弹性与创伤后成长关系的元分析[J]. 中国健康心理学杂志, 2021, 29(5): 645-651.

Palacio C, Krikorian A, Limonero JT. The influence of psychological factors on the burden of caregivers of patients with advanced cancer: Resiliency and caregiver burden. Palliat Support Care. 2018;16(3):269-277.

Anthony E J, Koupernik C. The child in his family: Children at psychiatric risk[J].1974.

李崇新,汪菊芬. 西方家庭抗逆力理论:内涵、模型与实务应用[J].人口与社会,2018,34(02):88-100.

刘媛媛,邓云,刘兰香,等.不孕症女性与配偶生育压力、感知伴侣回应及家庭复原力的关系研究[J].护理学杂志,2024,39(13):1-5.

McCubbin H I, McCubbin M A. Typologies of resilient families: Emerging roles of social class and ethnicity[J]. Family relations, 1988: 247-254.

Walsh F. Family resilience: A framework for clinical practice[J]. Family process, 2003, 42(1): 1-18.

Black K ,Lobo M . A Conceptual Review of Family Resilience Factors [J]. Journal of Family Nursing, 2008, 14 (1): 33-55.

戴艳. 中学生家庭复原力的结构及其与心理健康的关系研究[J]. 北京: 北京师范大学, 2008.

朱冬梅. CHF患者照顾者照顾负担、家庭复原力与生活质量的相关性研究[D].延边大学,2022.

王海兰,苟菊香,陶琳.国内外癌症患者及照顾者个人复原力与家庭复原力的研究进展[J].四川医学,2023,44(04):418-422.

Li Y, Wang K, Yin Y, et al. Relationships between family resilience, breast cancer survivors’ individual resilience, and caregiver burden: A cross-sectional study[J]. International journal of nursing studies, 2018, 88: 79-84.

Li Y, Qiao Y, Luan X, et al. Family resilience and psychological well‐being among Chinese breast cancer survivors and their caregivers[J]. European journal of cancer care, 2019, 28(2): e12984.

Simon J B, Murphy J J, Smith S M. Understanding and fostering family resilience[J]. The family journal, 2005, 13(4): 427-436.

孙绪晗,吴媛,王雨晴,等.家庭复原力在乳腺癌患者护理领域的应用进展[J].中国护理管理,2023,23(10):1574-1577.

Patterson J M. Families experiencing stress: I. The Family Adjustment and Adaptation Response Model: II. Applying the FAAR Model to health-related issues for intervention and research[J]. Family systems medicine, 1988, 6(2): 202.

Hill R. Families under stress: adjustment to the crises of war separation and return[J]. 1949.

McCubbin H I, Thompson A I.The family stress process: the double ABCX model of adjustment and adaptation[J]. Marriage and family review, 1983, 6: 7-37.

刘洋,杨金秋,叶本兰,等.中文版家庭坚韧性量表的信度和效度研究[J].护理管理杂志,2014,14(11):770-772.

SIXBEY M T. Development of the family assessment scale to identify family resilience consructs[D]. Gainesville: University of Florida, 2005.

Cripe C T. Family resilience, parental resilience and stress mediation in families with autistic children[M]. Northcentral University, 2013.

Jang H Y, Yi M. Effects of burden and family resilience on the family adaptation of family caregivers of elderly with dementia[J]. Korean Journal of Adult Nursing, 2013, 25(6): 725-735.

Faqurudheen H, Mathew S, Kumar T M. Exploring family resilience in a community mental health setup in south India[J]. Procedia Economics and Finance, 2014, 18: 391-399.

Kaya M, Arici N. Turkish version of shortened Family Resiliency Scale (FRAS): The study of validity and reliability[J]. Procedia-Social and Behavioral Sciences, 2012, 55: 512-520.

樊颖维,米雪,张立力.中文版家庭韧性评估量表在癌症患者家庭中的信效度检验[J].中国全科医学,2017,20(23):2894-2899.

邓梅娟.癌症患者及其主要照顾者家庭韧性与生活质量的相关性研究[D]. 大连医科大学,2019.

卜彤,刘惠军.家庭复原力问卷的编制[J].心理技术与应用,2019,7(03):173-182.

Chen J J, Wang Q L, Li H P, et al. Family resilience, perceived social support, and individual resilience in cancer couples: analysis using the actor-partner interdependence mediation model[J]. European Journal of Oncology Nursing, 2021, 52: 101932.

胡鑫,卢惠娟,陆箴琦,张玉侠,张晓菊,梁燕.家庭坚韧性在中青年癌症患者照顾者知觉压力与家庭适应间的中介效应[J].护理学杂志,2022,37(2):74-77

孙荣,田超,曲慧萍,等.居家癌症生存者家庭复原力对配偶照顾负担的影响研究[J].中国慢性病预防与控制,2021,29(08):610-613.

吴燕红,董超群,岑伊贝妮,等.孤独症儿童家庭复原力现状及其影响因素的研究[J].军事护理,2022,39(08):34-37.。

雷欢,赵珍珍,谢小英,等.白血病患儿家庭复原力现状及其影响因素调查[J].护理研究,2021,35(22):4110-4113.

吴凡,绳宇.社会支持网络、自我效能及健康促进行为对老年人影响的路径分析[J].中华护理杂志,2019,54(11):1701-1706.。

Ruiz B O, Zerbetto S R, Galera S A F, et al. Family resilience: perception of family members of psychoactive substance dependents[J]. Revista latino-americana de enfermagem, 2021, 29: e3449.

袁慧,孙慧敏.老年期痴呆患者照顾者心理弹性的研究进展[J].中华护理杂志,2016,51(04):483-487.

王璟,岳树锦,张润节,等. 大肠癌患者家庭照顾者因素对其照顾负担影响的纵向研究 [J]. 中国护理管理, 2021, 21 (08): 1250-1256.

田晔. 家庭抗逆力视角下化疗期癌症病人照顾者的照顾体验研究[D].东南大学,2020.

Li Q ,Loke Y A . A spectrum of hidden morbidities among spousal caregivers for patients with cancer, and differences between the genders: A review of the literature [J]. European Journal of Oncology Nursing, 2013, 17 (5): 578-587.

杨国清.社会家庭支持干预对精神病患者生存质量的影响分析[J].中国校医,2018,32(04):301-302.

Hwang IC, Kim YS, Lee YJ, et al. Factors Associated With Caregivers' Resilience in a Terminal Cancer Care Setting. Am J Hosp Palliat Care. 2018;35(4):677-683.

刘惠军,卜彤.家庭韧性对抑郁的影响:个体心理韧性的部分中介作用[J].心理与行为研究,2020,18(01):72-77.

Refbacks

  • 当前没有refback。